So I guess I will start by introducing myself. My name is Tatiana Walker. I’m 22 years old. ⚁ ⚁ I have been married to my best fraaaand for ✌ years now. And we have been together for ⚃. We have two dogs. 🐶 🐶 One of them is a 9 year old Jack Russell Terrier and the other one is a 7 month old Great Pyrenees/German Shepherd mix. She’s going to be huge, I know. 😂😳🙄
I feel like I had a very unique childhood. I was raised as a Jehovah’s Witness. I was home schooled other than eighth grade. I am white, but Spanish is my first language. I grew up in Illinois. And before you ask, no I did NOT live in Chicago. I grew up in the middle of corn and bean fields. Literally. Chicago is only a small part of Illinois. 😂 I’m an only child and I was actually a surprise baby.
Oh, and I have an autoimmune disease called Polymyositis.
Bet you are probably wondering what that is, right?? Well, let me explain. Basically my immune system is a jerk. 😤 It’s attacking my muscles and it causes severe pain and exhaustion. Apparently I’ve had this my whole life. The muscle part just didn’t show up until August of 2014. It’s chronic, which means that there is no cure. But it IS treatable. It’s in the same family as fibromyalgia, lupus, and rheumatoid arthritis. Polymyositis is really rare and affects less than 1% of the population.
Now, because this disease is SO rare it took a long time for me to get a diagnosis. It was an incredibly long and taxing experience. 😴😓🤒 It tested me in ways I never knew I could be. I got so sick I literally almost died in September of 2015. I know what it’s like to literally have every single ability taken from you. And I’ve learned how to stay positive no matter what. I learned exactly how much our attitude affects our life, and I chose to be happy no matter what. I can actually legitimately say that I’m grateful for this entire experience. I’m grateful for everything it has taught me, and I’m grateful for everyone that I have met and gotten close to because of this disease.
My goal is to help just ONE person with my story. To inspire that ONE person not to give up even when it feels like the whole world is against you. 💪 To convince that ONE person to keep pushing no matter what. And to teach that ONE person how to find the positive out of a negative.
I hope you find my unique experiences and world view bring a smile and different outlook to your day. In my next post I will give you a little more detail on how it feels to be that sick. Especially when it’s hard to see from the outside.